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TOPIC: Quilting with disabilities

01 Jul 2008 21:54 #21181

There was also somewhere on the forum a discussion that Mucinex relieved sone folks' pain
Last Edit: by PattiSure.
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01 Jul 2008 19:43 #21165

  • neen1
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May the fleas of a thousand camels infest "the agent's" armpits, Rachel......

I hope you feel better soon. Have you considered giving "Sea Buckthorn" a try, for your fibro? Google it. It's very interesting....

neen
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01 Jul 2008 17:55 #21158

:) Hi everyone, I just thought I would give a quick update on everything that has happened over the past 2 weeks with the Drs. and ins. First of all since the accident I have been given more diagnosis and meds then I care to mention. Well today I got test results back that gave me answers. The good news is we have ruled out Lupus, Sjogren's syndrome, rhumetoid arthritis, Lymes disease and a few others. This Dr has also confirmed that Yes I do have Fibro. Many have thought this but did not want to officially diagnose this or treat it. This Dr. is angry that I was not sent to him sooner. He stated that he should have been the type of Dr. they should have been working with right along. Especially since the pain kept getting worse. So now we are increasing my meds. However the ins. still won't pay for the one med so the pharmacy won't give me any of them. :twisted: Yep the agent says she has to work on her mail as it is dated and she is working on mail dated June 23. So the frustration continues.
Rachel
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30 Jun 2008 11:54 #21062

My aunt had Sjogren's syndrome.It is often associated with illnesses like Lupus or arthritis,the kind of illnesses where the body attacks itself.The main symptoms are dry mouth and eyes,my aunt had to use fake tears and saliva,not pleasant, I hope you don't have it. Feel better soon. Julie
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25 Jun 2008 18:03 #20804

Ok Good news and bad news. The bad news is that Dr. did not get the letter sent out like she wanted. Apparently it has to go through some dictation process. She did talk to the insurance person on the phone and to my lawyer. BUT until the insurance company gets the letter they won't do anything. Good news is she just sent me another weeks worth of meds. Granted I don't have my Loratab but I am trying to cope without it. Not very well I might add. My Dad is on them and he has offered me some of his. Of course I said no. He doesn't understand that he could be in big trouble if he gave me those. Mean while has any of you heard of Sjogren's Syndrome? I am in the process of looking it up.
Rachel
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25 Jun 2008 10:22 #20781

  • eileenkny
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Rachel, make that doctor a quilt!! WooHoo!!!!!!!!!!! I am so happy that you've got her on your side.
Eileen

from the beautiful Hudson Valley of NY
Gammill Classic Plus w/IQ
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23 Jun 2008 21:47 #20671

Rachel - that is good news indeed. Nice to have an advocate - so hard to find.
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med update 23 Jun 2008 18:49 #20652

:D Hello :!: I have some good news or at least I hope it is. I went to my Neurologist today. I explained to her what was going on with the insurance company and my meds. She gave me a bunch of samples that the other Dr. didn't have and then called the insurance company to give them a peice of her mind. Oh boy did she ever :!: I was standing right there and she curtly explained why I was on the meds and that if they had a problem with it they should have called her and not just taken it upon themselves to not pay for them. Afterall she was the Dr. not them and it was her oppinion that mattered as to what was good for her patient. Meanwhile where does this women get off thinking that after 2 years of being on this med and it being paid for that suddenly I would no longer need it. Then my Dr. sent exactly what the med was for and why I was on it and the dangers of me being off it by fax. It was amazing and awesome :D Up until that moment I was having such a rotten day. This insurence lady was refusing to pay for not only this med but also the xrays from my accident. I had found out this over the weekend. Anyway things are looking up Rachel
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19 Jun 2008 11:19 #20357

First off I want to appologize to everyone for being whiney yesterday. :oops: I try to be very opptomistic but rainy days get to me. I know that is no excuse but it is true. I love thunderstorms, but gloomy overcast depresses me. That and being without my meds for so long just was too much I guess. Anyway :D Eileen please make sure you tell you Dr. about your tired neck and the depression especially. Maybe you could use a soft neck brace at night while awake so that you can still be productive and have your neck supported? I know when I worked in the nursing home we used them on a couple ladies after 5pm because they were just to tired to keep their head up. I'm talking about the kind you get for mild neck injuries, not the stiff hard ones. It's just a thought. Frances what kind of pain are you still having in your foot. Did it just not heal right? Remember this is only June so it is not too unrealistic to think that it is still in the healling stage. Afterall we aren't 18 anymore :( Remember you probably didn't listen completely to ALL the Dr. instructions. As my DH say it's Dr. INSTRUCTIONS NOT ADVICE! :roll: like he knows anything right :?: :mrgreen: Well I hope you all feel better soon Rachel
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19 Jun 2008 11:04 #20355

Eileen, glad you are going to have a change of scenery and near KQ to add to your delights. Maybe all of that shopping will help you forget that you are in a lot of pain. I have only minor aches and pains so I have no clue what you are going through but a little quilt shopping can't hurt. Judy in AZ where it is going to be 112 today
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19 Jun 2008 11:02 #20354

Eileen, you are not complaining, you are venting and that is neccessary sometimes. If we don't vent we may explode :lol: :P 8) Just joking!! For years I had pain from my back and from fibromyalgia. It is difficult to get the right care at times when needed and have people understand what you are going through. I completely understand the difficulties. I wish that I had some good advice but all I can say is hang in there and keep venting. I hope that things will get better for you soon. I finally got a prescription for fibro that works and they opperated on my back (birth defect). I had to really push the DR. ?? that was treating me at the time to do something. I am better but not perfect.
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19 Jun 2008 09:38 #20345

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I've got an appointment with my pain mgmt doctor this afternnon. I have to tell her that the cortisone shot she gave me in my right elbow last month wore off and that the burning sensation I've had in my right forearm has now extended to that elbow. I've also been having problems with my neck again. Toward the end of each day, I can barely hold my head up so I have to lean it back against the headrest on my sofa. Only problem with that, I'm feeling pressure pushing on the lower back of my head so it's not comfortable leaning my head back. I usually end up kind of leaning to one side.
I know that my pain is nothing compared to many people but I'm so afraid that I'm losing the ability to function. I'm driving with one hand, I can't keep my head in the right position to sew or quilt for very long.
I'm just depressed and the Wellbutrin doesn't do much. I feel very weepy a lot of the time.
I'll let you know what the doc says.
Sorry for complaining.
eileenkny

from the beautiful Hudson Valley of NY
Gammill Classic Plus w/IQ
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18 Jun 2008 23:20 #20317

Rachel,
Good for you, taking rests. My Dr. and Chiropractor told me the same thing. I actually bought a small timer to use to remind me to take breaks. I broke my ankle back in March and am still having problems with it. I start PT tomorrow morning.
Frances
Last Edit: by Franceslovesfabric.
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18 Jun 2008 19:57 #20310

Frances, what exactly did you do to your ankle again? I know you probably told me but my memory is so bad it's pathetic. My family usually jokes when I get mad that I'll be over it before even I know it. Or better yet my DH will say I guess you forgot you were giving me the silent treatment. Anyway it was a somewhat productive day. I got the heart quilt pattern figured out. Now I know how you can do it in strips! YEAH ME :!: :!: :!: :D :D :D I also got a lot done on my cathedral windows quilt. :P If I were to put it together now it would be baby size. I sew for about15 minutes and rest for about 30. and that is my day. Rachel
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